DNA databases & information
Forensic DNA databases provide great advances in identifying criminals and solving crimes. Medical DNA data can improve diagnostics and speed up research into new medicines. So what is, and what is not, possible with these various types of data? And do the benefits of using this data outweigh the potential disadvantages, such as loss of privacy? What role does intellectual property play?
Current projects
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More data, more issues
Towards responsible data management for personalised diagnostics: interconnected datacultures in life science, medicine and society (ReDaPeD)
An exploration of the possibilities for collaboration between stakeholders to realize responsible management of data in research and care
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Responsible insurance
Towards a responsible insurance system in the era of personalized medicine. Exploring dilemmas of genomic health information in private life insurance.
What is the source of the fear of genetic discrimination with insurance? How to insurance companies cope with this?
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Aligning life-science technology promises and societal expectations
Platform technologies and expectation management
How can the promises of scientists and the expectations in society be better attuned to one another?
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Genealogy research and identity
Dutch-ness in Genes and Genealogy: following genetic diversity around science and society
What effects do new genetic techniques and their applications in the area of geneaology and archaeology have on how we experience our identity?
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Altered storage of genomics data
Blurring boundaries and user-roles at the interface of genetic, medical and personal information
What are the characteristics of various biobanks and what effect do they have on users?
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Novels as future genomics scenarios
Genomics novels as test-beds for genomics futures
How can novels influence discussion about the effects of genomics?
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Bio-information and self-image
Bioinformation and identity: A biographical analysis of the impact of bioinformatics on the human sciences and humanities
How do bio-informatics and bio-information affect our individual and collective image of ourselves as human beings?
Completed projects
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Biobanks and governance
Biobanks and governance
Which issues should be set on the agenda in the public debate about biobanks?